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Striving to improve the lives of individuals and families affected by urea cycle disorders.

Join over 928 participants by getting involved in one of our 8 research studies.

Participants make it possible for researchers to find new treatments, create new studies, and work for the improvement of all lives affected by rare diseases.


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Thinking about participating in a clinical study? See if one of our locations is near you!

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Join The RDCRN UCDC Contact Registry!

Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.

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