News and Events

Requests for Applications released for MGNet Scholar and Pilot Grant programs; see also updates on the Explore MG 2 and ADAPT-TeleMG studies.
August 06, 2021

Requests for Applications released for MGNet Scholar and Pilot Grant programs; see also updates on the Explore MG 2 and ADAPT-TeleMG studies.

Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article
May 04, 2021

Challenges in conducting clinical research in the midst of the COVID-19 pandemic are spotlighted in an article from three consortia of the Rare Diseases Clinical Research Network (RDCRN).

MGNet Newsletter Consortium Updates MGNet Announces 2021 MGNet Scholar
May 2021

MGNet announces 2021 Pilot Grant awardees, and provides updates on the Scholar Program, Organizational Meeting, and Scientific Symposium, and offers insight into studies including Explore MG2, ADAPT-teleMG, Biomarker Discovery for MG, and MuSK MG Study.

MGNet Newsletter Consortium Updates MGNet Announces 2021 MGNet Scholar
February 2021

Announcing the 2021 MGNet Scholar along with updates on the Clinical Outcome Measures Symposium and Pilot Program.

MGNet November 2020 Newsletter Consortium Updates, MGNet Grant Application Deadlines are Quickly Approaching!
November 19, 2020

Consortium updates regarding the Scholar Program, Pilot Program, and the Explore MG2 and Adapt Tele-MG Studies.

MGNet July 2020 Newsletter Consortium Updates
July 2020

2020 MGNet Pilot Award recipient announced, exploring a virtual pilot study amid COVID-19, recapping the first virtual industry symposium.

Carolina Barnett-Tapia, MD, PhD
July 08, 2020

The Myasthenia Gravis Rare Disease Network (MGNet) has awarded the 2020 MGNet Pilot Award to Carolina Barnett-Tapia, MD, PhD, Assistant Professor, Department of Medicine (Neurology) and Institute of Health Policy, Management and Evaluation, University of Toronto. Dr. Barnett-Tapia specializes in patient-centered outcomes in neuromuscular disorders, researching patients’ perspectives on their symptoms and treatments.

Amanda Guidon, MD
June 12, 2020

The Myasthenia Gravis Rare Disease Network (MGNet) has awarded the 2020 MGNet Scholar Award to Amanda Guidon, MD, a neuromuscular neurologist at the Massachusetts General Hospital and an assistant professor of neurology at Harvard Medical School.

MGNet March 2020 Newsletter Consortium Updates 2020 MGNet Scholar Award Recipient
May 26, 2020

2020 MGNet Scholar Award Recipient, MGNet Virtual Symposium, and the COVID-19 Webinar.

Myasthenia Gravis YouTube
March 19, 2020

A webinar on myasthenia gravis featuring Hana Axelrod, MD, MPH and Henry J. Kaminski, MD, of MGNet talk about COVID-19 and its impacts on myasthenia gravis patients.

Myasthenia Gravis FI2
October 7, 2019

The National Institutes of Health (NIH) awarded a research team at the George Washington University (GW) $7.8 million to establish a rare disease network for myasthenia gravis. The network, which will become one of 23 established NIH Rare Diseases Clinical Research Networks, will include basic and clinical investigators, patient advocacy groups, and biotechnology and pharmaceutical companies working together to enhance therapeutic development for this rare disease.