How do I learn more about current open studies?
Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study
How do I participate in a study?
Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.
For All Diseases studied by the RKSC
6404: Biobank Protocol
Adenine phosphoribosyltransferase (APRT) deficiency (Dihydroxyadeninuria)
Primary hyperoxaluria (PH)
More studies and sites may be opening soon! Please visit us again or Join the Contact Registry!
The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.