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National Institutes of Health Partners

The Rare Diseases Clinical Research Network (RDCRN) is a network of 20 individual clinical research consortia and a Data Management and Coordinating Center (DMCC) funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS). Now in its fourth five-year funding cycle, RDCRN is a partnership with funding and programmatic support provided by Institutes, Centers, and Offices across NIH, including:

Key Personnel

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Tiina K. Urv

Tiina K. Urv, PhD

Program Director

Division of Rare Diseases Research Innovation
National Center for Advancing Translational Sciences
National Institutes of Health

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Joanne Lumsden

Joanne M. Lumsden, PhD

Scientific Program Manager (Contractor)

Division of Rare Diseases Research Innovation
National Center for Advancing Translational Sciences
National Institutes of Health