Resources for Early Stage Investigators
A variety of government agencies and other organizations offer information, resources, and services designed to support early stage investigators in the field of rare diseases research. Click on the links below to find a variety of these resources. See also our pages offering resources for researchers and clinicians and funding opportunities.
Rare Disease Clinical Research Training Program
The Rare Disease Clinical Research Training Program is a free, one-year virtual program designed to equip and serve early career clinical researchers. The overall goals are to attract and retain new investigators in the field of rare disease.
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PORTICO Clinical Trials Toolkit
The PORTICO Clinical Trials Toolkit is a curated series of publicly accessible videos and links covering essential operational details that early investigators need to know before embarking on a clinical trial with a special focus on pediatric trials.
Visit the ToolkitNIH Mentored Research (K) Career Development Awards for Clinician Researchers
NIH Mentored Research (K) Career Development Awards for Clinician Researchers, featuring Paula Gregory, PhD, Associate Dean for Faculty & Educational Development, UNTHSC Graduate School of Biomedical Sciences, with Debra Regier, MD, PHD, of Children's National Hospital, Principal Investigator of the Rare Disease Scholar's Program.
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Conference on Clinical Research for Rare Diseases
The Conference on Clinical Research for Rare Diseases addresses rare disease research methodology and is intended for new investigators, trainees, and junior faculty.
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