Latest News

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

Rare Research Report: October 2025

October 28, 2025

Dystonia Coalition: Advice and Accomplishments from 15 Years of Dystonia Research

October 27, 2025

Developing Best Practices for Data Sharing in Rare Disease Research

September 26, 2025

Chart showing agreements among the RDCRN parties involved in data sharing.

Rare Research Report: September 2025

September 22, 2025

Insights from Families and Caregivers Navigating Rare Diseases

August 27, 2025

Rare Research Report: August 2025

August 26, 2025

$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network

August 12, 2025

Group photo of approximately 50 DMCC members seated and standing in rows.

Rare Research Report: July 2025

July 23, 2025