Advancing Rare Disorders: Vascular mAlformation Research Network with CaNVAS (ARDVARC)
Grant number: U54 HL185006-01
Principal Investigators
Lead Institution: Children's Hospital of Philadelphia
Diseases Studied
- PIK3CA-Related overgrowth spectrum with vascular malformations (PROSvm)
- Extracranial arteriovenous malformations (eAVMs)
- Complex lymphatic anomalies (CLA)
Funding Statement
The Advancing Rare Disorders: Vascular mAlformation Research Network with CaNVAS (ARDVARC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). ARDVARC is funded under grant number HL185006 as a collaboration between NCATS, and the National Heart, Lung, and Blood Institute (NHLBI). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818.