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Diseases Studied

The Rare Diseases Clinical Research Network is an NIH-funded research network of 20 active consortia or research groups working to advance treatment for diseases that are rare. Use the search tools on this page to find the diseases we currently study. You can reach out to the indicated consortia or research groups for more information on those diseases and studies underway.

This network focuses on clinical research and does not generally support clinical care outside of research activities. To learn about other rare diseases, please visit the Genetic and Rare Diseases Information Center (GARD), which is an NIH program that helps the public find reliable information about rare and genetic diseases. Their staff are specialists. Contact them at 1-888-205-2311 or email

All Diseases > Urticarial vasculitis

Urticarial vasculitis

Disease Category: Vasculitis Disorders

A variant of cutaneous vasculitis characterized by small blood vessel inflammation, causing red, painful, raised patches (weals) on the skin that resembles urticaria (hives). There are two types: normocomplementaemic and hypocomplementaemic, indicating either normal or low levels of complement proteins (proteins that fight infection) in the blood. Symptoms include abdominal or chest pain, fever, joint and muscle pain, and angioedema (swelling of the skin or mucous membranes).

Research groups studying this disease

Vasculitis Disorders
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Vasculitis Clinical Research Consortium (VCRC)

Vasculitis Foundation Canada encourages and supports research efforts for the cause and cure for all forms of Vasculitis. 

We raise awareness of vasculitis, fund research and provide support to people with vasculitis in the UK.

Supports and advances the cause of vasculitis patients, researchers, and healthcare professionals.