The Rare Diseases Clinical Research Network is an NIH-funded research network of 20 active consortia or research groups working to advance treatment for diseases that are rare. Use the search tools on this page to find the diseases we currently study. You can reach out to the indicated consortia or research groups for more information on those diseases and studies underway.
This network focuses on clinical research and does not generally support clinical care outside of research activities. To learn about other rare diseases, please visit the Genetic and Rare Diseases Information Center (GARD), which is an NIH program that helps the public find reliable information about rare and genetic diseases. Their staff are specialists. Contact them at 1-888-205-2311 or email GARDinfo@nih.gov.
All Diseases > CNS Vasculitis
Disease Category: Vasculitis Disorders
A rare disorder characterized by inflammation of the blood vessels of the central nervous system (brain and spinal cord). There are two forms. The primary form occurs without an underlying condition, while the secondary form is caused by underlying conditions such as autoimmune disorders or systemic infections. Symptoms include severe headaches, swelling of the brain, stroke, forgetfulness, confusion, vision problems, seizures, ataxia (lack of coordination), muscle weakness, and sensory disturbances.
Research groups studying this disease
Vasculitis Clinical Research Consortium (VCRC)View Disease Definition
Lauren Currie Twilight Foundation
We raise awareness of vasculitis, fund research and provide support to people with vasculitis in the UK.
Vasculitis Foundation Canada
Vasculitis Foundation Canada encourages and supports research efforts for the cause and cure for all forms of Vasculitis.
Supports and advances the cause of vasculitis patients, researchers, and healthcare professionals.