Diseases Studied
The Rare Diseases Clinical Research Network is an NIH-funded research network of 20 active consortia or research groups working to advance treatment for diseases that are rare. Use the search tools on this page to find the diseases we currently study. You can reach out to the indicated consortia or research groups for more information on those diseases and studies underway.
This network focuses on clinical research and does not generally support clinical care outside of research activities. To learn about other rare diseases, please visit the Genetic and Rare Diseases Information Center (GARD), which is an NIH program that helps the public find reliable information about rare and genetic diseases. Their staff are specialists. Contact them at 1-888-205-2311 or email GARDinfo@nih.gov.
All Diseases > Aortitis
Aortitis
Disease Category: Vasculitis Disorders
Aortitis is a rare form of vasculitis characterized by inflammation that predominantly affects the aorta. This type of vasculitis has been recognized as a separate entity relatively recently, and its definition continues to be the subject of debate. Generally, cases of aortitis include patients with aortitis with or without vasculitis of other large vessels who cannot be classified as having another type of large vessel vasculitis (such as giant cell arteritis or Takayasu’s arteritis) or another systemic condition known to be associated with aortitis.
Research groups studying this disease
Vasculitis Foundation Canada
Vasculitis Foundation Canada encourages and supports research efforts for the cause and cure for all forms of Vasculitis.
Lauren Currie Twilight Foundation
We raise awareness of vasculitis, fund research and provide support to people with vasculitis in the UK.
Vasculitis Foundation
Supports and advances the cause of vasculitis patients, researchers, and healthcare professionals.