The Rare Diseases Clinical Research Network is an NIH-funded research network of 20 active consortia or research groups working to advance treatment for diseases that are rare. Use the search tools on this page to find the diseases we currently study. You can reach out to the indicated consortia or research groups for more information on those diseases and studies underway.
This network focuses on clinical research and does not generally support clinical care outside of research activities. To learn about other rare diseases, please visit the Genetic and Rare Diseases Information Center (GARD), which is an NIH program that helps the public find reliable information about rare and genetic diseases. Their staff are specialists. Contact them at 1-888-205-2311 or email GARDinfo@nih.gov.
All Diseases > Cutaneous Vasculitis
Disease Category: Vasculitis Disorders
A rare disorder characterized by inflammation or necrosis (tissue death) of blood vessel walls and skin lesions. Skin lesions commonly come and go, affecting the back, hands, buttocks, lower extremities, and inner forearms. Symptoms include intense itching, skin ulceration, blisters, darkened spots, scarring, fever, joint and muscle pain, and malaise (general discomfort).
Research groups studying this disease
Vasculitis Clinical Research Consortium (VCRC)View Disease Definition
Supports and advances the cause of vasculitis patients, researchers, and healthcare professionals.