Diseases Studied
The Rare Diseases Clinical Research Network is an NIH-funded research network of 21 active consortia or research groups working to advance treatment for diseases that are rare. Use the search tools on this page to find the diseases we currently study. You can reach out to the indicated consortia or research groups for more information on those diseases and studies underway.
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All Diseases > Autoimmune encephalitis
Autoimmune encephalitis
Alternative Names: AE
Disease Category: Autoimmune Encephalitis
A condition in which the immune system attacks the brain, leading to symptoms including neurological and psychiatric symptoms. These include new onset psychosis, hallucinations, anxiety, depression, memory problems, slowed processing speed, executive dysfunction, seizures, movement disorders, blood pressure and breathing problems. Sometimes a specific antibody (a Y shaped protein made by the immune system to signal a potential target and threat) that is directed towards a part of a brain cell is identified.
Research groups studying this disease
Autoimmune Encephalitis
Autoimmunity, Rasmussen’s, Inflammation & Status Epilepticus Research Network (ARISEN)
Autoimmune Encephalitis Alliance
The Autoimmune Encephalitis (AE) Alliance strives to educate physicians, establish a supportive community of patients, families, and caregivers, and to facilitate scientific research into the causes of AE and its treatment.
International Autoimmune Encephalitis Society
The International Autoimmune Encephalitis Society (IAES) is a 501(c)(3) nonprofit, founded in 2016, dedicated to serving patients and families affected by autoimmune encephalitis. Run entirely by volunteer AE patients and caregivers, it's a global organization focused on this critical area. IAES empowers AE Warriors—patients, caregivers, and families—through education, advocacy, and support from diagnosis through recovery. We strive to elevate awareness of AE through research across medical specialties. Within its community, the organization is known as a "Home for the AE Warrior," a designation that highlights its commitment to exemplary service and support.
The Sumaira Foundation
The Sumaira Foundation (TSF) is dedicated to raising awareness of rare neuroimmune conditions, building communities of support for patients and their caregivers, supporting research and advocating on behalf of patients.