Spotlight on Rare Diseases is the official newsletter of the Rare Diseases Clinical Research Network, an NIH-funded research network of 20 active consortia or research groups -- teams of researchers, patients, and clinicians -- each focused on a group of rare disorders. Look to this newsletter for news, features, and insights about rare diseases research from across our national network. Questions? Contact us at rd.dmcc@cchmc.org.
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RDCRN Communications Working Group
Executive oversight of the RDCRN communications program is provided by the Communications Working Group, part of the RDCRN’s Strategic Planning Committee.
Chair
Mustafa Sahin, MD, PhD
Boston Children's Hospital
Members
Dakota Campbell
Cincinnati Children’s Hospital Medical Center
Stephen Cederbaum, MD
University of California at Los Angeles
S. Ali Fatemi, MD
Kennedy Krieger Institute
Tracy Hart
Osteogenesis Imperfecta Foundation
Eileen King, PhD
Cincinnati Children’s Hospital Medical Center
Joyce Kullman
Vasculitis Foundation
Stacy Pike-Lagenfeld
Krabbe Connect
Marc Rothenberg, MD, PhD
Cincinnati Children’s Hospital Medical Center
Michael Seid
Cincinnati Children’s Hospital Medical Center
Meera Shah
National Institutes of Health, Office of Rare Diseases Research
Jill Schlabig Williams
Cincinnati Children’s Hospital Medical Center
Tiina Urv, PhD
National Institutes of Health, Office of Rare Diseases Research
Spotlight on Rare Diseases Newsletter Staff
The newsletter is managed by staff within the RDCRN’s Data Management and Coordinating Center, which is based at Cincinnati Children’s Hospital Medical Center.
Managing Editor
Jill Schlabig Williams
Staff Writer
Dakota Campbell