Newsletter of the Rare Diseases Clinical Research Network

The staff of Spotlight are enthusiastic about the potential of our new publication to enhance communication among those interested in treatment and cure of rare diseases. We are very interested in your thoughts about how Spotlight can be improved. If you have suggestions for future issues, please let us hear from you. You can send your comments to


Mustafa Sahin, MD, PhD
Boston Children's Hospital

Assistant Editors

Cameron Hainline
University of South Florida

Editorial Board

Rashmi Gopal-Srivastava, Ph.D., 
Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences (NCATS)

Hyder Jinnah, MD, PhD
Emory University

Joyce Kullman
Vasculitis Foundation; RDCRN Coalition of Patient Advocacy Groups

David Robertson, MD
Vanderbilt University

Marc E. Rothenberg, MD, PhD
Cincinnati Children's Hospital Medical Center

Robert D. Steiner, MD
University of Wisconsin

Chester B. Whitley, PhD, MD
University of Minnesota