Spotlight on Rare Diseases
The Newsletter of the National Institutes of Health-funded Rare Diseases Clinical Research Network
In this Issue:
Insights from Families and Caregivers Navigating Rare Diseases $27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network Rare Research Report August 2025 Go to IssueNewsletter of the Rare Diseases Clinical Research Network
Spotlight on Rare Diseases is the official newsletter of the Rare Diseases Clinical Research Network, an NIH-funded research network of 21 active consortia or research groups -- teams of researchers, patients, and clinicians -- each focused on a group of rare disorders. Look to this newsletter for news, features, and insights about rare diseases research from across our national network. Questions? Contact us at rd.dmcc@cchmc.org.
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Spotlight on Rare Diseases Newsletter Editor
Dakota Campbell
RDCRN Communications Program Manager