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Spotlight On Rare Diseases

Spotlight on Rare Diseases

The Newsletter of the National Institutes of Health-funded Rare Diseases Clinical Research Network

In this Issue:

  • Lab Notes
  • COVID‑19 Projects
  • New Research
  • Patient Engagement in Research
  • Network News
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Tags

nephropathology
CDG
DC
CF
Brittle Bone Disorders Consortium
kidney diseases
FCDGC
upper limb dystonia
primary ciliary dyskinesia
BBD

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The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Office of Rare Diseases Research (ORDR). The RDCRN websites are hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818.