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Spotlight On Rare Diseases

Spotlight on Rare Diseases

The Newsletter of the National Institutes of Health-funded Rare Diseases Clinical Research Network

In this Issue:

  • Lab Notes
  • COVID‑19 Projects
  • New Research
  • Patient Engagement in Research
  • Network News
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Tags

primary ciliary dyskinesia
EGIDS
BBD
Genetic Disorders of Mucociliary Clearance Consortium
tremor
BVMC
Congenital and Perinatal Infections Rare Diseases Clinical Research Consortium
PCD
Scientist Spotlight
osteogenesis imperfecta

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The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Office of Rare Diseases Research (ORDR). The RDCRN websites are hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818.