Skip to main content

Main navigation

  • Rare Disease Research
    • Find Diseases We Study
    • Rare Diseases Research Groups & Studies
    • Publications
  • COVID-19 Initiatives
  • Patients and Families
    • Patient Organizations
    • Survey on Impacts of COVID-19
    • Encuesta COVID
    • Additional Resources
  • Researchers
    • RDCRN Conference on Clinical Research for Rare Diseases (CCRRD)
      • Resources From Past CCRRD Conferences
    • RDCRN Training Opportunities
    • Other Rare Disease Initiatives
    • NIH Data Sharing
  • News
  • About Us
facebook twitter linkedin RDCRN Members Login
Home
facebook twitter linkedin RDCRN Members Login
  • Rare Disease Research
    • Find Diseases We Study
    • Rare Diseases Research Groups & Studies
    • Publications
  • COVID-19 Initiatives
    • Resources for Researchers
    • Resources for Patients and Families
    • Survey on Impacts of COVID-19
    • Encuesta COVID
  • Patients and Families
    • Patient Organizations
    • Survey on Impacts of COVID-19
    • Encuesta COVID
    • Additional Resources
  • Researchers
    • RDCRN Conference on Clinical Research for Rare Diseases (CCRRD)
      • Resources From Past CCRRD Conferences
    • RDCRN Training Opportunities
    • Other Rare Disease Initiatives
    • NIH Data Sharing
  • News
    • Latest News
    • Spotlight Newsletter
  • About Us

Spotlight On Rare Diseases

Spotlight on Rare Diseases

The Newsletter of the National Institutes of Health-funded Rare Diseases Clinical Research Network

In this Issue:

  • Lab Notes
  • COVID‑19 Projects
  • New Research
  • Patient Engagement in Research
  • Network News
Go to Issue


Your participation makes a world of difference.
Learn How

Stay Up To Date With The Spotlight On Rare Diseases Newsletter

Subscribe

About Spotlight

Tweets by rarediseasesnet

Tags

primary ciliary dyskinesia
BBD
Genetic Disorders of Mucociliary Clearance Consortium
BVMC
PCD
osteogenesis imperfecta
GDMCC
cavernous angioma
COVID-19
OI

Footer Bottom Links

  • Contact Us
  • Accessibility & Disclaimer
    • facebook
    • twitter
    • linkedin
The Rare Diseases Clinical Research Network is an initiative of the Office of Rare Diseases Research. National Center for Advancing Translational Sciences (NCATS) funded through a collaboration between NCATS and the National Institutes of Health.