Rare diseases are unique as a medical field, comprising a large number of disorders with a small number of patients in each. The methods employed in rare diseases research (RDR) require models and analytical tools that are different from more common conditions. The Rare Disease Research Training Program is an 8 week curriculum provided over an academic year employing specific tools and methods unique to rare diseases.
There are 6 components to this program:
The Conference on Clinical Research for Rare Diseases addresses rare disease research methodology and is intended for new investigators, trainees, and junior faculty.
For additional information, please visit rdcrn.org/conference.