RDCRN Contact Registry
Join the RDCRN Contact Registry

The Rare Diseases Clinical Research Network (RDCRN) Contact Registry is a way for patients with rare diseases and their family members to learn about research studies they may be able to join. Participation is completely voluntary and you may choose to withdraw at any time. There is no cost to join the Contact Registry.

How to Join
Type your disease name in the box below, then click the disease link to join.

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