The Rare Diseases Clinical Research Network (RDCRN) an initiative of the Office of Rare Diseases Research, NCATS, is made up of 22 research consortia and a Data Management and Coordinating Center that are working together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community. The RDCRN provides up-to-date information for patients and assists in connecting patients with advocacy groups, expert doctors, and clinical research opportunities. More about the RDCRN >
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