Impact Features
Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.
![Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.](/sites/default/files/styles/news/public/2024-01/RDCRN_TAIRD_Jan2024.jpg?itok=sCSn81J4)
January 29, 2024
The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.
![Osteogenesis Imperfecta Over Time: What We’re Learning from a Natural History Study](/sites/default/files/styles/news/public/2023-09/RDCRN_Roundup-BBDC.jpg?itok=4Nswqsn5)
September 22, 2023
![RDCRN_Blog-Sahin](/sites/default/files/styles/news/public/2022-07/RDCRN_Blog-Sahin.jpg?itok=DT3AZp_p)
November 22, 2021
We are launching a new article series that offers a window into rare diseases research with this issue of the Spotlight newsletter.
![Michelle Fynan, PhD, LMHC](/sites/default/files/styles/news/public/2022-07/Fynan-blog-image.jpg?itok=h3GaMKw2)
November 16, 2021
Michelle Fynan, PhD, LMHC, shares her journey with OI, from adolescent struggles to finding her purpose as an OI activist and researcher.
![Chaya Nautiyal Murali, MD,](/sites/default/files/styles/news/public/2022-07/RDCRN_Blog-Graphic_Murali%20%281%29.jpg?itok=AGPHYX1Y)
November 9, 2021
Chaya Nautiyal Murali, MD, a pediatric geneticist at Baylor College of Medicine, discusses her start in rare disease research, exciting discoveries,…
![Brendan Lee, MD, PhD,](/sites/default/files/styles/news/public/2022-07/BBDC%20PI%20Collage.png?itok=VcJx2ZtD)
November 3, 2021
Brittle Bone Disorders Consortium (BBDC) principal investigator Brendan Lee, MD, PhD, and Vernon Sutton, MD, share the history of the…
![Patient Advocate Tracy Hart, CEO of the OI Foundation (left) with Ingunn Westerheim, president of the OI Federation Europe](/sites/default/files/styles/news/public/2021-10/RDCRN_Blog-Graphic_Patient-Advocate_Tracey-Hart_Templates_1200x628_02.jpg?itok=dvV_JAmD)
January 26, 2021
Tracy Hart, chief executive officer of the Osteogenesis Imperfecta Foundation, serves as chair of the Rare Diseases Clinical Research Network (RDCRN…