Congenital Disorders of Glycosylation Over Time: What We’re Learning from a Natural History Study
To learn more about the development and outcomes of congenital disorders of glycosylation (CDG), the Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is conducting a natural history study, “Clinical and Basic Investigations into CDG.” The team is exploring the progression of CDG, clinical symptoms, and how they vary among different population groups.
Preliminary Survey Results Highlight Impact of COVID-19 on Rare Disease Community
February 10, 2021
RDCRN Partnering with NIAID on Serosurvey of People Living with Rare Diseases
February 8, 2021