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Latest News

Training Program for Clinical Research in Rare Disease Launches New Session

The National Institutes of Health-funded R25 Rare Disease Clinical Research Training Program is launching a new training program for clinical research in rare disease. Now in its seventh year, this year-long, hybrid, free program is designed to support new investigators in the field of rare disease clinical research.

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant
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Consortium Spotlight: Advancing Discoveries in Phenylalanine Disorders

November 1, 2022

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Phenylalanine Families and Researchers Exploring Evidence (PHEFREE) logo

Consortium Spotlight: Advancing Discoveries in Congenital and Perinatal Infections

October 11, 2022

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Congenital and Perinatal Infections Consortium logo

Consortium Spotlight: Advancing Discoveries in the Leukodystrophies

August 23, 2022

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Global Leukodystrophy Initiative Clinical Trials Network logo

Consortium Spotlight: Advancing Discoveries in Charcot-Marie-Tooth Disease

August 9, 2022

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Inherited Neuropathy Consortium logo

Consortium Spotlight: Advancing Discoveries in Amyotrophic Lateral Sclerosis and Related Disorders

July 28, 2022

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Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) logo

Development of Outcome Metrics Leads to First FDA-Approved Treatment for Eosinophilic Esophagitis

June 27, 2022

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CEGIR members gathering in 2020

Consortium Spotlight: Advancing Discoveries in Mitochondrial Diseases

June 3, 2022

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North American Mitochondrial Disease Consortium (NAMDC) logo

Consortium Spotlight: Advancing Discoveries in the Dystonias

May 5, 2022

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Dystonia Coalition logo
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The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). The RDCRN websites are hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818. The content of this website is the responsibility of the DMCC and the RDCRN consortia and does not necessarily represent the official views of the NIH.