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$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network

Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.

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Group photo of approximately 50 DMCC members seated and standing in rows.

Patient Advocate Spotlight: Kristen Hutchinson Spytek Accelerates Awareness and Research in Congenital Cytomegalovirus

October 18, 2022

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Patient Advocate Spotlight: Erica Barnes Fights for Children with Metachromatic Leukodystrophy and Other Rare Diseases

August 30, 2022

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Headshot of Erica Barnes, MS, CCC-SLP

Patient Advocate Spotlight: Kristin Anthony Brings Expertise in PTEN Hamartoma Tumor Syndrome Advocacy to New Role as Chair of RDCRN Patient Groups

August 5, 2022

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Patient Advocate Spotlight: Andrea Miller Creates Global Connections for Congenital Disorders of Glycosylation

July 7, 2022

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Andrea and her daughter, Bianca, celebrating World CDG Awareness Day

Patient Advocate Spotlight: Mark Rudolph Supports and Connects the Dystonia Community

May 17, 2022

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Patient Advocate Spotlight: Connie Lee Creates Connections for Cerebral Cavernous Malformation Research

October 26, 2021

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Connie-Lee

Patient Advocate Spotlight: Kristen Wheeden Steps into Lead Role for RDCRN Patient Groups

August 2, 2021

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Kristen Wheeden and her son, Brady, standing on their porch

Consortium Spotlight: New Consortium Targets Congenital and Perinatal Infections

January 26, 2021

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