Latest News

Developing Best Practices for Data Sharing in Rare Disease Research

The RDCRN has developed principles and guidance to ensure that network research teams can effectively share data with others.

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Chart showing agreements among the RDCRN parties involved in data sharing.

Fourth Network Funding Cycle Launches Changes, Welcomes Challenges

July 1, 2020

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Tiina K. Urv, PhD, Program Director, Office of Rare Diseases Research within the National Institutes of Health's National Center for Advancing Translational Sciences

NIH’s Rare Diseases Clinical Research Network Launches New Logo

February 11, 2020

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NIH Announces New RDCRN Funding to Bolster Rare Diseases Research Collaborations

October 4, 2019

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Precision Medicine approach to Nephrotic Syndrome

February 27, 2019

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Primary Immune Deficiency Treatment Consortium (PIDTC)

February 27, 2019

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newborn-screening

Brittle Bone Disorders Consortium pioneers Osteogenesis Imperfecta research and treatment

February 27, 2019

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Scientists at CCHMC Uncover Three Distinct Subtypes of Eosinophilic Esophagitis (EoE)

July 6, 2018

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Eosinophilic Esophagitis (EoE)

CEGIR – Improving research of eosinophilic gastrointestinal disorders with the patient perspective

January 5, 2018

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