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Insights from Families and Caregivers Navigating Rare Diseases

To help drive research in the areas that matter most, investigators from the RDCRN asked families and caregivers to share their experiences.

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Early Stage Investigator Spotlight: Jennifer Yi-Chun-Lai Yee Receives Career Enhancement Award from Nephrotic Syndrome Study Network

October 4, 2022

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Early Stage Investigator Spotlight: Steven Sloan Develops Brain Organoids to Study Congenital Disorders of Glycosylation

June 14, 2022

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Early Stage Investigator Spotlight: Zarazuela Zolkipli-Cunningham Designs Novel Outcome Measures for Mitochondrial Disease

May 19, 2022

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Headshot of Zarazuela Zolkipli-Cunningham, MBChB, MRCP

Early Stage Investigator Spotlight: Siddharth Srivastava Investigates Genetic Causes of Neurodevelopmental Disorders

April 21, 2022

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Early Stage Investigator Spotlight: BreAnna Kinghorn Improves Outcomes for Children with Primary Ciliary Dyskinesia

March 22, 2022

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Early Stage Investigator Spotlight: Girish Hiremath Explores the Epidemiology of Eosinophilic Gastrointestinal Diseases

March 4, 2022

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SCID, Angels for Life Foundation Announces 2022 Grant Awardees

January 24, 2022

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Headshots of Donald Kohn, MD, and Jolan Walter, MD, PhD

Early Investigator Spotlight: UCDC Trainees Drive Discoveries in Urea Cycle Disorders

December 9, 2021

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