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Rare Research Report: January 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for January 2026.

Rare Research Report: October 2023

October 17, 2023

Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

September 26, 2023

Rare Research Report: September 2023

September 19, 2023

Updating Guidelines for Clinical Management of Phelan–McDermid Syndrome

August 25, 2023

Rare Research Report: August 2023

August 14, 2023

Rare Research Report: March 2023

March 20, 2023

Milk Elimination Diet Shows Promise as First-Line Therapy for Eosinophilic Esophagitis

February 27, 2023

Rare Research Report: February 2023

February 22, 2023