The Myasthenia Gravis Rare Disease Network (MGNet) has awarded the 2020 MGNet Pilot Award to Carolina Barnett-Tapia, MD, PhD, Assistant Professor, Department of Medicine (Neurology) and Institute of Health Policy, Management and Evaluation, University of Toronto. Dr. Barnett-Tapia specializes in patient-centered outcomes in neuromuscular disorders, researching patients’ perspectives on their symptoms and treatments.
Dr. Barnett-Tapia’s project, “Patient Preferences Regarding Symptoms and Side Effects from Treatments in Myasthenia Gravis: A Discrete Choice Experiment,” aims to explore the perspectives of myasthenia gravis (MG) patients regarding symptoms and side effects from treatment, focusing on the differences between physician and patient preferences. The project will also explore and demonstrate how using patient-centered preferences affects clinical trial design and drug development.
This MGNet pilot program, in partnership with the Myasthenia Gravis Foundation of America and Conquer MG, supports investigator-initiated studies that address clinical research in MG. Dr. Barnett-Tapia will receive up to $75,000 support for her work.
Congratulations, Dr. Barnett-Tapia!