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Impact Features

Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.

Click here for a complete list of all RDCRN consortia.

Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

January 29, 2024

The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.

Headshot of Mark Rudolph

May 17, 2022

Mark Rudolph serves as president of the Dystonia Medical Research Foundation (DMRF), a patient advocacy group that supports individuals and families…

Headshot of David Peterson, PhD

May 10, 2022

David Peterson, PhD, is an associate research scientist at the Institute for Neural Computation, University of California San Diego (UCSD); director…

Dystonia Coalition logo

May 5, 2022

The Dystonia Coalition is an international network of researchers and patient advocacy groups working to advance the pace of research in the…