Impact Features
Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.
![Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.](/sites/default/files/styles/news/public/2024-01/RDCRN_TAIRD_Jan2024.jpg?itok=sCSn81J4)
January 29, 2024
The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.
![Telehealth in Myasthenia Gravis: What We’re Learning from a Pilot Study](/sites/default/files/styles/news/public/2023-08/Pilot-MGNet.jpg?itok=MWSBs9_m)
August 22, 2023
![Headshot of Felipe Polo-Wood](/sites/default/files/styles/news/public/2022-10/RDCRN_Blog-mgnet-patient-spotlight-2022-3.jpg?itok=YVzed2IR)
February 25, 2022
Felipe Polo-Wood is an innovator—both in his work as an IT consultant and as a patient with myasthenia gravis (MG), a chronic autoimmune…
![Headshot of Linda Kusner, PhD](/sites/default/files/styles/news/public/2022-10/RDCRN_Blog-mgnet-researcher-spotlight-2022-3.jpg?itok=2xp72dEK)
February 25, 2022
Linda Kusner, PhD, is a research professor of pharmacology, physiology, genomics, and precision medicine at the George Washington University School…