Skip to main content

Impact Features

Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.

Click here for a complete list of all RDCRN consortia.

Image
Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

January 29, 2024

The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.

Image
Telehealth in Myasthenia Gravis: What We’re Learning from a Pilot Study

August 22, 2023

Image
Headshot of Felipe Polo-Wood

February 25, 2022

Felipe Polo-Wood is an innovator—both in his work as an IT consultant and as a patient with myasthenia gravis (MG), a chronic autoimmune…

Image
Headshot of Linda Kusner, PhD

February 25, 2022

Linda Kusner, PhD, is a research professor of pharmacology, physiology, genomics, and precision medicine at the George Washington University School…