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Impact Features

Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.

Click here for a complete list of all RDCRN consortia.

Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

January 29, 2024

The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.

The Consortium of Eosinophilic Gastrointestinal Disease Researchers logo appears over a gray graphic of molecules

February 27, 2023

For patients with eosinophilic esophagitis (EoE)—a chronic immune disease typically triggered by food allergens—treatment often focuses on food…

CEGIR members gathering in 2020

June 27, 2022

For the first time, patients diagnosed with eosinophilic esophagitis (EoE) have a treatment option approved by the US Food and Drug Administration (…

Headshot of Girish Hiremath, MD, MPH

March 4, 2022

Girish Hiremath, MD, MPH, a pediatric gastroenterologist leading the pediatric Eosinophilic Gastrointestinal Disorders clinic at Vanderbilt…

Marc Rothenberg, MD, PhD

January 14, 2021

Marc Rothenberg, MD, PhD, is the director of the Cincinnati Center for Eosinophilic Disorders (CCED) at Cincinnati Children’s Hospital Medical Center…