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Rare Research Report: January 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Former LDN Fellow Paves the Way for Earlier Diagnosis in Metachromatic Leukodystrophy

September 24, 2024

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Rare Research Report: August 2024

August 26, 2024

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Rare Research Report: July 2024

July 26, 2024

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Eosinophilic Gastrointestinal Diseases Over Time: What We’re Learning from a Natural History Study

July 22, 2024

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Eosinophilic Gastrointestinal Diseases Over Time: What We’re Learning from a Natural History Study

Rare Research Report: June 2024

June 26, 2024

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Dystonia Over Time: What We’re Learning from a Natural History Study

June 26, 2024

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Dystonia Over Time: What We're Learning from a Natural History Study

Rare Research Report: May 2024

May 29, 2024

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Phenylketonuria Over Time: What We’re Learning from a Natural History Study

May 28, 2024

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Phenylketonuria Over Time: What We’re Learning from a Natural History Study