Latest News

Rare Research Report: September 2023

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Rare Research Report: January 2023

January 20, 2023

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Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias

January 10, 2023

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Rare Research Report: December 2022

December 5, 2022

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Training Program for Clinical Research in Rare Disease Launches New Session

November 9, 2022

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Rare Research Report: November 2022

November 7, 2022

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Consortium Spotlight: Advancing Discoveries in Phenylalanine Disorders

November 1, 2022

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CPIC Announces 2022 Pilot Project Award Recipient

October 26, 2022

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Early Stage Investigator Spotlight: Stephanie Sacharow Helps Patients with Phenylketonuria Overcome Barriers to Treatment

October 25, 2022

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