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Pre-Doc Preparatory Program (P³) in Translational Research

Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and t

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National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16, 2024

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Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13, 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Rare Research Report: January 2024

January 16, 2024

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Rare Research Report: December 2023

December 19, 2023

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Severe Combined Immune Deficiency Over Time: What We’re Learning from Natural History Studies

December 12, 2023

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Severe Combined Immune Deficiency Over Time: What We’re Learning from Natural History Studies

Neonatal Enterovirus and Human Parechovirus Viral Sepsis Over Time: What We’re Learning from a Natural History Study

November 21, 2023

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Neonatal Enterovirus and Human Parechovirus Viral Sepsis Over Time: What We’re Learning from a Natural History Study

Rare Research Report: November 2023

November 14, 2023

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Urea Cycle Disorders Over Time: What We’re Learning from a Natural History Study

October 30, 2023

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Urea Cycle Disorders Over Time: What We’re Learning from a Natural History Study